Written Aug 26, 2011 11:40am
We are saying goodbye to our precious baby today. Giving family a chance to say their goodbyes, including Tucker. Then we will send everyone away so Austin & I can be alone with him once he’s off the machines. Just the 3 of us, like the day he was born. We will let everyone know arrangements once they are done. Thank you all for your love, support & prayers. Greyson will have a great time in heaven listening to my dad & all his grandpas tell tall tales with sweet ChiChi laying beside him.

Written Aug 26, 2011 7:16pm
Greyson has gone.

Those were words friends of mine wrote the day their precious baby boy, Greyson, died. Heart wrenching for a parent to have to write much less read. I’m sitting here with tears in my eyes just trying to write this and both my children are grown and healthy. I can’t imagine the pain and suffering my friends went through. It breaks my heart thinking about it knowing that there was something that could have been done at the start that might have prevented his death.

You see he had a congenital heart defect. Greyson’s specific condition is called Hypoplastic Left Heart Syndrome. His left ventricle did not properly develop, so he basically had only the right side of his heart. There is a test hospitals can do to detect this defect and begin treatment immediately but unfortunately, most hospitals don’t perform this test (it only costs $10) and the hospital where Greyson was born, at the time, didn’t choose to perform the test. They do now thanks to the brave parents of little Greyson who decided their baby boy wasn’t going to die in vain.

In this week’s video blog, meet Greyson’s parents, Austin and Melissa Moore, and hear their story and what’s being done to help prevent future parents from going through what they’ve been through.
Alisa Hines